Connor's First EEG

Today we had Connors first EEG.

The doctor ordered a sleep deprived test... This was especially hard since we had to not only keep our son up until midnight the night before, but also wake him up at 5 am.  He was not a happy camper!

As you could probably guess, we were ALL sleep deprived!  But we made it to the hospital.

As we got into the lobby our son was anything but sleep deprived as he caught his second wind.

This worried me because we were hoping he'd be EXTRA tired so he wouldn't care about the mass amount of wires around his head.  It did make me smile though :)

We were called to the back and luckily they already knew to have cartoons playing.  

He sat on Trevs lap as the Doctor and I were trying to convince him these wires weren't that bad.

We were playing with them and let him even "attach" one to my head.  He had fun :)

The Doctor kept warning me that he was just too young and wouldn't sit still long enough to do all the wires and to do the test... He estimated it would take 2 hours since we had to go extra slow.

Connor took all of us by surprised and even though he cried and resisted a few times, he still did great and let the Doctor finish in less than 30 minutes!

They hooked Connor up to the machine and begun the test.  Luckily for most of it we could just lay together and watch TV.  As we were all sleep deprived we tried SO hard not to fall asleep on that huge bed.  It was way too comfy for our own good.

For the final minutes of the test they had to run a strobe light over Connor.  He absolutely HATED it as any kid would, and cried hysterically.  

It was only natural for me to comfort him since I already felt HORRIBLE, but the Doctor ordered me to let him cry, for it would help get better results.  The was way harder than it seemed.

After the test was over my son JUMPED right up and into Trevor's arms, for at this point he was more than ready to head home.  [We all were].

We go Monday afternoon to get the results from both the EEG and MRI [even though we did receive news the MRI thankfully came back normal!]  

When we got home Connor and I both fell asleep right away [and for what seemed like forever.]

When we gave Connor his bath it took a while to get all that jelly out of his hair [poor guy]. 

I believe there's still a little stuck in there haha

We also had to get the "stickies" off his belly.  That was a challenge in itself.

I was worried about him in the beginning, how this would affect him and us.  He's done so well and is my inspiration every single day.  He is definitely one tough cookie :)

First Tests COMPLETED

It's been a while since I've lasted updated and a LOT has happened.

Connor is doing AMAZING on his medicine.  No seizures that I know of which is great.

Trevor came home from deployment and we're still adjusting to everything.

This has all caused some hidden stresses in our lives and we are still trying to cope.

It's hard, scary, frustrating and sometimes very painful...

Connor's MRI was very hard for me... He had to get sedated by anesthetics.

When the doctor called us back he let me hold him while they put the mask over his face.

I didn't know I had to wrap my leg over his body and hold down his arms... 

I was trying so hard to stay strong and let him know it's okay and that mommy was here, but all I could do is let out a whisper being that I was on the edge of bursting into tears. 

I caught a whiff of the anesthetic and immediately felt nauseous.  It was all too much for me.

Finally he stopped struggling, screaming and crying, and fell right to sleep.

I didn't get very far in that hallway before I lost it in Trevor's arms.

It was about an hour and a half until I saw them wheel a huge bed with a little body through the lobby.

I followed the nurse and my son up the elevator and to the recovery room.

I had to wait to enter the recovery room until after he woke up, so Trev and I waited nervously..

I pictured him to be screaming and crying for mommy and being so afraid, so I couldn't help but burst into tears and into a laugh when I saw him sitting up in the bed with a huge popsicle.

He was so weak and still a bit sleepy so this huge popsicle was at times too heavy for him to hold.

He's such a brave soul and I admire him every day...

We went home and to my surprise my friend Vic brought him over a HUGE Car's cupcake.

He thoroughly enjoyed this treat, and it was much deserved...

I'm so glad I have such great friends here to help keep me grounded.

I'm not sure what I would do without them :)